Issues
Volume 219 Issue 8
News
Spotlight on kidney health of Aboriginal and Torres Strait Islander peoples
The spotlight is on the kidney health of Aboriginal and Torres Strait Islander peoples, with a new supplement published today in the Medical Journal of Australia. The supplement highlights the need for equity for Aboriginal and Torres Strait Islander people who require a kidney transplant and demonstrates the importance of engaging with Indigenous communities about their health and wellbeing needs. “Recorded rates of kidney failure requiring dialysis or transplantation among Aboriginal and Torres Strait Islander Australians have risen progressively over the past 40 years, remaining consistently higher than rates for non-Indigenous Australians,” wrote the authors, including Professor Jaquelyne Hughes, a clinical research professor at Flinders University and a consultant nephrologist. “Aboriginal and Torres Strait Islander people have age-adjusted incidence rates of kidney replacement therapy — dialysis or transplantation — eight to nine times higher than those of non-Indigenous Australians, with the median age of Aboriginal and Torres Strait Islander people who experience kidney failure being nearly 30 years younger than non-Indigenous people.” In light of this information and community and clinician prioritising, a 23-member National Indigenous Kidney Transplantation Taskforce (NIKTT) was commissioned in 2019. It has worked to improve access to the kidney transplant waiting list for Aboriginal and Torres Strait Islander peoples. “The taskforce looked within ANZDATA to learn about presenting a data pathway of clients and clinicians working together through the transplant assessments,” Professor Stephen McDonald, Chair of NIKTT, said. “Taskforce members also said they needed local support to improve the local pathway, and NIKTT supported seven local projects with a one-year equity and access sponsorship.” The NIKKT was tasked with reporting on the extent of effort to reduce cultural bias in the kidney transplant area. It worked with the Lowitja Institute, which produced a cultural bias report that identified a dearth of publications. This highlights how future health improvements in kidney transplantation should be designed and also publicly reports on cultural bias and the steps taken by the NIKKT to mitigate cultural bias influencing access to transplantation. It was therefore crucial to establish a national network of Indigenous Reference Groups; this was led by supplement co-author Kelli Owen, the national community engagement coordinator for the NKTT. “Although there have been so many efforts to improve kidney health outcomes for Aboriginal and Torres Strait Islander people, there has not been a coordinated approach to consultation on addressing these challenges or improving service delivery,” Ms Owen said. “The key focus of the Taskforce is embedding our people’s self-determination and authority into designing models of care to improve access to kidney transplantation. “Before the establishment of the Indigenous Reference Groups, there was very limited input by Aboriginal and Torres Strait Islander consumers into the processes of care in renal units and no input about care in kidney transplant units.” Health systems across Australia need to be empowered to embrace and work with Indigenous knowledges, the authors wrote. “For Aboriginal and Torres Strait Islander peoples living with kidney disease and after transplantation, the health system must embed true partnership, engagement and, most importantly, real change from existing verbal feedback that is backed by evidence,” Ms Owen said. The MJA’s cover page today also features a photo of message sticks. “The message sticks depicted on the cover of the MJA today were purchased for our Indigenous Reference Groups,” Ms Owen said. “The message sticks help keep formalities at a meeting, with only the person holding a stick being able to have the floor.” Professor Hughes said the message sticks and the MJA cover were a visible demonstration of the way the taskforce and communities and listening to each other and working collaboratively. “The taskforce was a fantastic opportunity for Aboriginal and Torres Strait Islander peoples to create change they needed in health care, with the Indigenous Reference Groups carrying the voice and message of our people back to the taskforce and onwards to Canberra,” Professor Hughes said. “We look forward to a commitment for continued support of the Taskforce, so that we can be sure that improved kidney health and wellbeing among all our people is seen in real improvements in peoples lives and captured in routine data reporting.” Read the research in the Medical Journal of Australia. The Medical Journal of Australia is a publication of the Australian Medical Association. Media contacts: The media is invited to contact Callum Macpherson, Media & Production Officer at SAHMRI on 0419 607 905 or Callum. Macpherson@sahmri.com.
Sam Hunt
Time to treat the climate and nature crisis as one indivisible global health emergency
The Medical Journal of Australia (MJA) has joined more than 200 health journals to urge the World Health Organization to declare the deadly climate change and nature crisis as a global health emergency. The journals from across the world have come together to simultaneously publish an editorial calling on world leaders and health professionals to recognise that climate change and biodiversity loss are one indivisible crisis and must be tackled together to preserve health and avoid catastrophe. Co-authored by MJA Editor-in-Chief, Professor Virginia Barbour, the editorial argues that it is a “dangerous mistake” to respond to the climate crisis and the nature crisis as if they were separate challenges. The editorial is published in leading titles from around the world, including the MJA, The BMJ, The Lancet, JAMA, the East African Medical Journal, The National Medical Journal of India and the Dubai Medical Journal. Commenting on the editorial, Professor Barbour said that Australia must join other countries in taking action into this pressing issue. “The international academic community has spoken and it is clear that all governments must come together now to tackle the climate and nature crisis,” Professor Barbour said. “Here in Australia, we are seeing the effects of the accelerating climate crisis first hand. As we head into the southern hemisphere summer, Australians are only too aware of the potential for catastrophic events. The good news is that we can influence what happens in the future, but this will only happen through joint international action, including by Australia.” Human health is damaged directly by both the climate crisis and the nature crisis, with the poorest and most vulnerable communities often bearing the highest burden, the authors write. Rising temperatures, extreme weather events, air pollution, and the spread of infectious diseases are some of the major health threats exacerbated by climate change. For example, access to clean water is fundamental to human health, yet pollution has damaged water quality causing a rise in water-borne diseases, and ocean acidification has reduced the quality and quantity of seafood that billions of people rely on for food and their livelihoods. Biodiversity loss also undermines good nutrition and constrains the discovery of new medicines derived from nature, while changes in land use have forced tens of thousands of species into closer contact, increasing the exchange of pathogens and the emergence of new diseases and pandemics. Communities are healthier if they have access to high quality green spaces that help filter air pollution, reduce air and ground temperatures, and provide opportunities for physical activity. Connecting with nature also reduces stress, loneliness and depression while promoting social interaction — benefits that are threatened by the continuing rise in urbanisation. For Indigenous people, caring for and connecting with nature is especially important for their health.
Sam Hunt
Editor’s choice
Investigations in gastroenterology … and a focus on achieving kidney health equity for Indigenous Australians
This issue of the MJA has two themes. In the main journal, we have a series of articles on topics in gastroenterology, including a perspective by Fitzpatrick and colleagues on dietary management of eosinophilic oesophagitis, a chronic condition first described in the mid 1990s and now increasingly recognised as a frequent underlying cause of dysphagia and food bolus obstruction (doi: 10.5694/mja2.52101). The condition rarely resolves, and hence dietary management is key. Unfortunately, high quality trials are scarce and challenging to perform and the evidence base for treatment remains sparce. In the meantime, the authors argue the need for a careful multidisciplinary approach for management. A better recognised condition, coeliac disease, is the focus of a research letter by Muir and colleagues (doi: 10.5694/mja2.52105). International studies have shown that a family history of coeliac disease is the strongest risk factor for coeliac disease but limited data have been available for Australia. In their study of first degree relatives of patients in Brisbane, the authors found a substantial amount of undiagnosed coeliac disease in the relatives: “seven of 62 child first degree relatives of people with coeliac disease had biopsy‐confirmed disease [and] two of 140 adult first degree relatives had biopsy‐confirmed disease”. In a linked editorial, Robson and Day conclude “it is likely that many people with [coeliac disease] are not diagnosed in a timely fashion, if at all. Actively looking for coeliac disease in groups at greater risk may help identify these people earlier and avert disease‐related complications, regardless of the presence or absence of symptoms” (doi: 10.5694/mja2.52116). A second theme in this issue and the accompanying supplement is kidney disease. The main issue includes a guideline summary of recommendations for culturally safe clinical kidney care for First Nations Australians by Tunnicliffe and colleagues. The authors note that the recommendations represent “a major first step in addressing the evident disparity in [chronic kidney disease] among First Nations Australians compared with non‐Indigenous people in Australia”, and crucially, “are the first to be developed in partnership with First Nations Australians to improve kidney health and wellbeing” (doi: 10.5694/mja2.52114). The supplement published with this issue of the MJA also focuses on kidney disease. It comes from the National Indigenous Kidney Transplant Taskforce (NIKTT) and explores kidney transplantation for Aboriginal and Torres Strait Islander peoples from a number of different angles, including how to drive practice change in kidney transplantation care, how to address cultural bias, and the role of consumer engagement through Indigenous reference groups within transplantation units, all with the ultimate aim of improving equity and outcomes in kidney transplantation. The linked editorial by Hughes and colleagues in the main journal places the work in the context of the wider issue of inherent racism that exists in the health system in Australia for these patients (doi: 10.5694/mja2.52107). The authors observe that “As clinicians, researchers, policy makers, and health experts, we must all be drivers for change in how care is delivered so that it best serves the health gains of Aboriginal and Torres Strait Islander people.” They conclude with a call to action: “the NIKTT has established a foundation. The challenge for all of us is to build upon this if we are to succeed in achieving equity in access to kidney transplantation.” It's an important reminder of the continuing work that remains to be done.
Virginia Barbour
Editorials
Diabetes and non‐alcoholic fatty liver disease: a bittersweet symphony
Screening for and monitoring diabetes mellitus in people with NAFLD/NASH, and proactively managing it, are important
Daniel Clayton‐Chubb · Stuart K Roberts
Looking for coeliac disease hiding in the family
It is likely that many people with coeliac disease are not diagnosed in a timely fashion, if at all
Nicola Robson · Andrew S Day
The National Indigenous Kidney Transplantation Taskforce: changing systems to achieve equitable access to kidney transplantation
The NIKTT has established a foundation that we must build upon to achieve equity in access to kidney transplantation for Aboriginal and Torres Strait Islander people
Jaquelyne T Hughes · Katie Cundale · Kelli J Owen · Stephen P McDonald
Perspectives
Dietary management of eosinophilic oesophagitis
Multidisciplinary models of care including dietary therapy are needed in Australia
Jessica Fitzpatrick · Sarah L Melton · Rebecca E Burgell
The rise of direct‐to‐consumer telemedicine services in Australia: implications for primary care and future research
Robust research is needed into the rapidly emerging direct-to-consumer telemedicine industry in Australia
Darran Foo · Samantha Spanos · Genevieve Dammery · Louise A Ellis · Simon M Willcock · Jeffrey Braithwaite
Medical education
Human Clostridium chauvoei necrotising enterocolitis
A 48-year-old woman presented with three days of nausea and vomiting and two days of worsening right-sided lower abdominal pain
Myung Seo Ko · Trine Gulholm · Konstantin Yastrebov
Haemophagocytic lymphohistiocytosis secondary to disseminated tuberculosis in a young adult with Crohn's disease
A 25-year-old male patient reported four weeks of chills, night sweats, weight loss and dyspnoea following one week in Bali, Indonesia, seven weeks prior
Rattanak Visal Hean · David A Sheffield · Kirsten Herbert · David Brewster
Research
Diabetes mellitus and the progression of non‐alcoholic fatty liver disease to decompensated cirrhosis: a retrospective cohort study
Identifying advanced fibrosis and providing appropriate treatment to people with NAFLD/NASH is important for averting disease progression
James O'Beirne · Richard Skoien · Barbara A Leggett · Gunter F Hartel · Louisa G Gordon · Elizabeth E Powell · Patricia C Valery
Using a validated instrument to assess pregnancy planning and preconception care at antenatal booking visits: a retrospective cohort study
Broader use of the LMUP could improve the management of preconception health
Kirsten I Black · Edwina Dorney · Jennifer A Hall · Marilena Pelosi · Saleem Ahmed Khan · Kate Cheney
Research letter
Undiagnosed coeliac disease identified by active case finding in first degree relatives of people with coeliac disease in Australia: a prospective observational study
Research supports active case finding among of first degree relatives of people diagnosed with coeliac disease
Richard Muir · Anuj Sehgal · Jason A Tye‐Din · A James M Daveson
Guideline summary
Recommendations for culturally safe clinical kidney care for First Nations Australians: a guideline summary
The incidence, prevalence and burden of chronic kidney disease in First Nations Australians is one of the highest in the world, which is reflective of the social gradient of disadvantage
David J Tunnicliffe · Samantha Bateman · Melissa Arnold‐Chamney · Karen M Dwyer · Martin Howell · Azaria Gebadi · Shilpa Jesudason · Janet Kelly · Kelly Lambert · Sandawan William Majoni · Dora Oliva · Kelli J Owen · Odette Pearson · Elizabeth Rix · Ieyesha Roberts · Ro‐Anne Stirling‐Kelly · Kimberly Taylor · Gary A Wittert · Katherine Widders · Adela Yip · Jonathan Craig · Richard K Phoon
Consensus statement
Routine ear health and hearing checks for Aboriginal and Torres Strait Islander children aged under 6 years attending primary care: a national consensus statement
New recommendations for primary care assessment of ear health and hearing status of young Aboriginal and Torres Strait Islander children
Samantha Harkus · Vivienne Marnane · Isabel O'Keeffe · Carmen Kung · Meagan Ward · Neil Orr · John Skinner · Kelvin Kong · Lose Fonua · Michelle Kennedy · Mary Belfrage
Letters
Japanese encephalitis virus: changing the clinical landscape of encephalitis in Australia
Guy D Eslick · Suzy M Teutsch · Elizabeth J Elliott
We need to chat about artificial intelligence
Emily Squires · Stephen Bacchi · John Maddison
Supplement
Advancing accessible kidney transplantation for Aboriginal and Torres Strait Islander peoples
Med J Aust 2023; 219 (8 Suppl).
New Australian guidelines for diabetes-related foot disease
Annika Howells
Cancer care and outcomes through a health equity lens
Virginia Barbour
Lung cancer screening for Aboriginal and Torres Strait Islander peoples: an opportunity to address health inequities
Alison Brown · Gail Garvey · Nicole M Rankin · Claire Nightingale · Lisa J Whop
The complex impact of COVID‐19 on cancer outcomes in Australia
Karen Canfell · Karen Chiam · Carolyn Nickson · G Bruce Mann
Responding to the challenges of emerging health threats
Virginia Barbour
Carbapenemase‐producing Enterobacterales: a profound threat to Australian public health
Erin Flynn · Lito E Papanicolas · Nicholas Anagnostou · Morgyn S Warner · Geraint B Rogers · Erin Flynn · Lito E Papanicolas · Nicholas Anagnostou · Morgyn S Warner · Geraint B Rogers
Sodium glucose cotransporter 2 inhibitor‐induced ketoacidosis is unlikely in patients without diabetes
Lisa M Raven · Christopher A Muir · Jerry R Greenfield
Breakthrough mpox despite two‐dose vaccination
Madhara N Weerasinghe · Catriona Ooi · George Kotsiou · Vincent J Cornelisse · Arran Painter · Madhara N Weerasinghe · Catriona Ooi · George Kotsiou · Vincent J Cornelisse · Arran Painter