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- 1 Menzies School of Health Research, Charles Darwin University, Darwin, NT
- 2 Royal Darwin Hospital, Tiwi, NT
- 3 University of Melbourne, Melbourne, VIC
- 4 Flinders University, Darwin, NT
- 5 Austin Health, Melbourne, VIC
- 6 Purple House, Alice Springs, NT
Open access:
Open access publishing facilitated by Charles Darwin University, as part of the Wiley – Charles Darwin University agreement via the Council of Australian University Librarians.
Data Sharing:
Data collected and analysed during the study are not publicly available due to privacy issues and ethical considerations. Data may be available from the corresponding author on reasonable request.
Warning: Aboriginal and Torres Strait Islander readers are advised that this article captures the knowledge and lived experiences of Indigenous people who have passed. With permission from family, we refer to our senior co‐author as “Jampijinpa” Ross. This article is a testament to his contributions to First Nations health. Out of cultural sensitivity, we do not use the names nor images of Indigenous people who participated in this research who have subsequently passed away.
Edith Waugh received an ANZCA Foundation (Australian and New Zealand College of Anaesthetists) Health Equity Grant 2022. The funding allowed planning, coordination and completion of focus (yarning) groups; participation and sharing of First Nations knowledge was appropriately reimbursed. Edith Waugh is supported by an Australian Government Research Training Scholarship. Matthew Hare is supported by the National Health and Medical Research Council (grant number 1194698), the Sylvia and Charles Viertel Foundation and an Australian Diabetes Society Skip Martin Fellowship.
The Top End Indigenous Reference Group and research assistant Stephanie Long from the INFERR (INtravenous iron polymaltose for First Nations Australian patients with high FERRitin levels on hemodialysis) study at Menzies School of Health Research were the catalysts leading to this study. This study emerged in response to their feedback about exploring postoperative outcomes for First Nations people in the Northern Territory and the need for this research to incorporate patient values.
No relevant disclosures.
Author contributions:
Waugh EB: Conceptualization; methodology; investigation (data collection); formal analysis; writing – original draft; writing – review and editing; project administration; funding acquisition. Hefler M: Methodology; formal analysis; writing – review and editing; supervision. Pascoe S: Methodology; investigation (data collection); formal analysis; writing – review and editing; project administration. Mayo M: Conceptualization; writing – review and editing; supervision. Hare MJL: Writing – review and editing; supervision. Story DA: Writing – review and editing; funding acquisition, supervision. Wilkshire N: Writing – methodology; investigation (data collection); formal analysis; review and editing; supervision. Henwood P: Writing – methodology; investigation (data collection); formal analysis; review and editing; supervision. Croker D: Writing – methodology; investigation (data collection); formal analysis; review and editing; supervision. Ross J: Writing – methodology; investigation (data collection); formal analysis; review and editing; supervision.
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Abstract
Objective: To explore the values of Aboriginal people in the Northern Territory during their perioperative journey.
Design: A community‐based participatory action research approach was used, integrating yarning, deep listening and reflection methods to gather qualitative data in culturally appropriate ways. Data collection involved two yarning circles followed by interpretation and triangulation sessions with co‐researchers.
Setting: Conducted in non‐health care settings in Garramilla (Darwin) between May 2023 and September 2024, the study included participants from urban, regional and remote NT Aboriginal communities.
Participants: Purposive and snowball sampling were used to engage 18 participants with lived experience of surgery, who share expertise in renal health journeys and have kinship ties spanning from Saltwater Country to Desert Country, with diverse age, language and gender representation.
Main outcome measures: Thematic insights into what First Nations peoples in the NT value during the perioperative journey, to inform culturally safe models of care.
Results: Respect emerged as the core principle in the perioperative journey, with family involvement, cultural practices and effective communication identified as key elements. Respect was evident in honouring cultural protocols, integrating traditional healing practices and recognising patient autonomy. Family involvement was highlighted as essential, with kinship ties influencing shared decision‐making processes and support throughout the perioperative experience. Culturally competent communication, including the use of interpreters and clear explanations, played a critical role in bridging cultural differences and ensuring shared understanding. Together, these elements fostered a sense of safety, belonging and empowerment. Ultimately, trust was identified as an overarching outcome that unified these interconnected values, enhancing patient comfort, engagement and overall satisfaction in the perioperative journey.
Conclusion: Respect is integral to Aboriginal people in the perioperative journey, and they value family, culture and communication when navigating surgery. When these values coalesce, trust is generated. These findings highlight the need to integrate culturally informed, patient‐centred care models that prioritise respect and trust building to improve accessibility, experience and surgical outcomes.