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Ethics

Ethics Short reports 19 October 2015 Free

Ethics and compliance hurdles in conducting multicentre low-risk research

Gaining ethics approval at one ethics committee involves effort, but in multicentre research projects, the effort is multiplied with non-concordant approval requirements

Merin V Pariyadan BPharm(Hons) · Elizabeth D Hotham PhD, MAppSc(Pharm), BPharm · Sean Turner MSc, BPharm · Sanjay Garg PhD, MPharm, MMgt

15 00537
Health services administration Research 19 October 2015 Free

“What should happen before asymptomatic men decide whether or not to have a PSA test?” A report on three community juries

Attitudes to what men should be told before undergoing a PSA test were examined

Chris Degeling PhD, BVSc · Lucie Rychetnik PhD, MPH · Kristen Pickles MPH · Rae Thomas PhD · Jennifer A Doust BM BS, PhD, FRACGP · Robert A Gardiner MD, FRCS, FRACS · Paul Glasziou BM BS, PhD, FRACGP · Ainsley J Newson PhD, LLB(Hons), BSc(Hons) · Stacy M Carter PhD, MPH(Hons)

15 00164
Health services administration Supplement 1 June 2015 Open Access

Talking About The Smokes: a large-scale, community-based participatory research project

Objective: To describe the Talking About The Smokes (TATS) project according to the World Health Organization guiding principles for conducting community-based participatory research (PR) involving indigenous peoples, to assist others planning large-scale PR projects. Design, setting and participants: The TATS project was initiated in Australia in 2010 as part of the International Tobacco Control Policy Evaluation Project, and surveyed a representative sample of 2522 Aboriginal and Torres Strait Islander adults to assess the impact of tobacco control policies. The PR process of the TATS project, which aimed to build partnerships to create equitable conditions for knowledge production, was mapped and summarised onto a framework adapted from the WHO principles. Main outcome measures: Processes describing consultation and approval, partnerships and research agreements, communication, funding, ethics and consent, data and benefits of the research. Results: The TATS project involved baseline and follow-up surveys conducted in 34 Aboriginal community-controlled health services and one Torres Strait community. Consistent with the WHO PR principles, the TATS project built on community priorities and strengths through strategic partnerships from project inception, and demonstrated the value of research agreements and trusting relationships to foster shared decision making, capacity building and a commitment to Indigenous data ownership. Conclusions: Community-based PR methodology, by definition, needs adaptation to local settings and priorities. The TATS project demonstrates that large-scale research can be participatory, with strong Indigenous community engagement and benefits.

Sophia Couzos FAFPHM, FACRRM, FRACGP · Anna K Nicholson GDipPH, BPhty(Hons) · Jennifer M Hunt MPH, FAFPHM, PhD · Maureen E Davey MB BS, FAFPHM · Josephine K May · Pele T Bennet BHSc · Darren W Westphal MPH · David P Thomas MB BS, PhD, FAFPHM

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