Integrated electronic health records and patient privacy: possible benefits but real dangers
Author: Meredith Carter
Published online: 3 January 2000
|
For Debate Integrated electronic health records and patient privacy: possible benefits but real dangers Strategies to develop integrated electronic health records must address consumer concerns, not dismiss them with claims of the "public good" Meredith Carter
MJA 2000; 172: 28-30 Introduction -
Newspeak -
Global claims -
New uses of data -
Attention to consumer and community -
References -
Authors' details
|
References
- Laires M, Ladeira M, Christensen J, editors. Health in the new communications age. Amsterdam: IOS Press, 1995.
- House of Representatives Standing Committee on Family and Community Affairs. Health on line. Report into health information management and telemedicine. Canberra: Commonwealth of Australia, 1997. Available at <http://www. aph.gov.au/house/committee/fca/tmreport.pdf>.
- The Caldicott Committee. Report on the review of patient-identifiable information -- December 1997. London: NHS Executive, 1997. Available at <http://www. doh.gov.uk/confiden/crep.htm>.
- Smith PF. Privacy, confidentiality and safety of healthcare information systems: better information is needed. Health Informatics J 1998; 4: 124-127.
- National Health Service Executive. Information for health: an information strategy for the modern NHS 1998-2005. NHS, 1998.
- Stevens R. Medical record databases. Just what you need? Report prepared for the Privacy Commissioner. New Zealand. April 1998. <http://www.privacy.org.nz/ people/mrdrep.html>. Accessed 11 November 1999.
- Privacy Commissioner of Canada. 1997-98 Annual Report. Ottawa: Minister of Public Works and Government Services Canada, 1998. Available at <http://www. privcom.gc.ca/02_04_06_e.htm>.
- Roberts M, Stokes J. Prescriptions, practitioners and pharmacists. Med J Aust 1998; 168: 317-318.
- Nygren E, Wyatt J, Wright P. Medical records: helping clinicians to find data and avoid delays. Lancet 1998; 352: 1462-1466.
- Powsner S, Wyatt J, Wright P. Medical records: opportunities for and challenges of computerisation. Lancet 1998; 352: 1617-1622.
- National Pharmacy Intranet Demonstration Project. Getting connected. Discussion paper. September 1998.
- Anderson RJ. Safety and privacy in clinical systems: the state of play. Health Informatics J 1998; 4: 121-123.
- Anthony D, Mandeville T, Hearn G, Holman L. Demand for broadband services in the health sector. Brisbane: Communication Centre Queensland University of Technology, 1994.
- Centralised data system worries. News from the Office of the Privacy Commissioner 1998: 29.
- Harding E. Privacy impact assessment and commentary on the health intranet project for New Zealand Health Information Service. Wellington: Ministry of Health, 1996; finding 6.
- Wahlberg D. Patient records on Web 2 months. The Ann Arbor News 1999; February 11. <http://aa.mlive.com/news/index.ssf?/news/stories/records2.frm>. Accessed 11 November 1999.
- New South Wales Independent Commission Against Corruption. Report of inquiry into unauthorised release of government information. Sydney: ICAC, 1992.
- House of Representatives Standing Committee on Legal and Constitutional Affairs (the Melham Committee). Canberra: Commonwealth of Australia, 1995.
- Walsh G. Review of policy relating to encryption technologies (the Walsh Report). <http://www.efa.org.au/Issues/Crypto/Walsh/walsh.htm>. Accessed 11 November 1999.
- The Ishtar Guidelines for healthcare security. Health Informatics J 1998; 4: 179-180.
- Aiken J. Proposed bills would restrict access to medical records. CNN Interactive. 1999; April 27.<http://cnn.com/ALLPOLITICS/stories/1999/04/27/medical.records/>. Accessed 11 November 1999.
- Carter M, et al. The information society in general practice: consumer perspectives: a report to the Department of Health and Aged Care General Practice Evaluation Program. Melbourne: Health Issues Centre, 1998.
- Debating health information technology [letter]. Health Affairs 1999; 18: 255.
- Detmer D, Deering M. Health information: a broader view. Health Affairs 1999; 18: 256-257.
- Advisory Council on Health Infostructure. Canada Health Infoway: Pathways to better health. Final report. Ottawa: Minister of Public Works and Government Services, 1999. Available at <http://www.hc-sc.gc.ca/ohih-bsi/achis/fin-rpt_e.html>.
Getting on the Same Page: Why Australia Needs a National Maternity Early Warning System (MEWS) Chart
Briony A. Cutts, Lucy Bowyer, Nisha Khot, Sandra Lowe, Stefan C. Kane
Data for Equity: Can Linked Administrative Data Inform Pathways to More Equitable Child Health?
Sarah Gray, Shuaijun Guo, Meredith O'Connor, Elodie O'Connor, Katrina Williams, Hannah Badland, Susan Woolfenden, Josie Dickerson, Gerry Redmond, Marnie Downes, Sharon R. Goldfeld
Specialty College Selection: Why Change is Critical to Support a Future Rural Workforce
Matthew R. McGrail, Jenny May AM, Katherine Logan
The number of cancer‐related deaths that could be attributable to spatial disparities in survival in Australia, 2010–2019: a retrospective population‐based cohort study
Charlotte K Bainomugisa, Jessica Cameron, Paramita Dasgupta, Peter Baade
Differentiated and simplified oral HIV pre‐exposure prophylaxis (PrEP) models hold the key to virtually eliminating HIV transmission in Australia by 2030
Tyson Arapali, Sarah Warzywoda, Anthony K J Smith, Curtis Chan, Timothy R Broady, Erin Sullivan, Catherine MacPhail, Mohamed A Hammoud, Alexander Dowell‐Day, Benjamin R Bavinton
Non‐technical errors associated with deaths in surgical care, Australia, 2012–2019, by surgical specialty (Australian and New Zealand Audit of Surgical Mortality): a retrospective cohort study
Jesse Ey, Victoria Kollias, Octavia Lee, Kelly Hou, Matheesha Herath, John B North, Ellie Treloar, Suzanne Edwards, Martin Bruening, Adam J Wells, Guy J Maddern