Article Types
Perspectives
Adult attention deficit hyperactivity disorder in Australia: how its current commercial model for diagnosis and treatment is encouraging misdiagnosis
High costs and inconsistent diagnostic standards for attention deficit hyperactivity disorder in adults contribute to overdiagnosis in high-functioning individuals and exclusion of more impaired patients
Richard CJ Bradlow · Ferghal Armstrong · Edward Ogden
The importance of universal child and family health services for equitable early development
By optimising existing investments and leveraging Australia’s strong universal foundation, we can enhance child and family health services and improve outcomes for all children and their families
Anna MH Price · Elodie O’Connor · Sharon R Goldfeld
From words to action: time for Australia to take shared decision making implementation seriously
Shared decision making is widely recognised in Australian health care policy but remains inconsistently implemented in practice. We highlight the Australian context, with international examples and suggested strategies to progress its implementation
For the Australian Shared Decision Making Research Network
Cass Review does not guide care for trans young people
Good medicine is guided by the values of the patient, not those of a clinician, politician or commentator. The Cass Review, lacking expertise and compromised by implicit stigma and misinformation, does not give credible evidence-based guidance
Julia K Moore · Cate Rayner · S Rachel Skinner · Katie Wynne · Blake S Cavve · Brodie Fraser · Uma Ganti · Claire McAllister · Gideon Meyerowitz‐Katz · Tram Nguyen · Anja Ravine · Brian Ross · Darren B Russell · Liz A Saunders · Aris Siafarikas · Ken C Pang
Advancing equity: the urgent need to include trans and gender diverse people in cervical cancer prevention in Australia
To meet national elimination goals for cervical cancer by 2035, a targeted approach to inclusive promotion and access to services for trans and gender diverse people is required
Kade Booth · Jamie Bryant · Shiva Chandra · Cristyn Davies · Lucille Kerr · Katie Wynne · Melissa A Carlson · Barrie Shannon · Sav Zwickl · Tamara Butler · Lisa J Whop
The contribution of evidence‐based practice and the practice‐based evidence approaches to contemporary Australian psychology: implications for culturally safe practice
Adopting a broader and more inclusive approach to evidence represents an important step toward addressing the persistent inequities experienced by many Aboriginal and Torres Strait Islander peoples and diverse communities
Paul Gray (Wiradjuri) · Dawn Darlaston‐Jones · Pat Dudgeon AM (Bardi) · Kate Derry · Joanna Alexi · William Smith (Wiradjuri and Wemba Wemba) · Tanja Hirvonen (Jaru and Bunuba) · David Badcock · Shraddha Kashyap · Belle Selkirk (Noongar)
Explaining risk in chronic conditions: the Yolŋu science of signs
Health practitioners should examine their communication practices seeking to replace terms that cause harm, such as “risk”, to ensure a safe environment for health decision making
Emma Haynes · Alison Mitchell · Minitja Marawili (Yolŋu) · Dawn C Bessarab (Bardi)
Systemic challenges for meaningful partnerships in Aboriginal and Torres Strait Islander health and medical research grant applications: a critical reflection
Examination of an Australian government scheme to fund health and medical research targeted at Aboriginal and Torres Strait Islander people
Heather McCormack · Troy Combo · Bridget G Haire
Reducing unprofessional practices in referrals to abortion care: proposing a minimum professional standard
This perspective applies the principles of medical professionalism to abortion referrals, presents a spectrum of referral practices, proposes a minimum standard for professional abortion referral, and identifies strategies to promote person-centred referrals
Shelly Makleff · Bronwen Merner · Kirsten I Black · Louise Keogh
Linguistic manoeuvres: obstetric violence camouflages harm and loss of consent from birth
A discussion on birth trauma, informed consent and obstetric violence in Australia
Harsha Ananthram · Liz Sutton · Rebecca Matthews · Nadine Montgomery · James Titcombe · Ajay Rane
Voluntary assisted dying: challenges in Northern Territory remote Aboriginal communities
Discussion of findings from a public voluntary assisted dying consultation process in the Northern Territory and how to ensure equitable access and cultural safety. Telehealth could improve access but presents clinical and legal challenges
Geetanjali Lamba · Kane Vellar · C Paul Burgess · Camille La Brooy · Paul A Komesaroff
A precautionary approach to social media: protecting young minds in an evolving digital world
We present a multilayered approach focused on systems-level change, including policy action, social media platform accountability and school-based initiatives, individual-level strategies and the critical need for a research agenda co-designed with young people
Ivana Stankov · Yonatal Tefera · Melissa Bradley · Alison Pickering · Emma Willoughby · Carmel Williams
Medical colleges have an obligation to ensure full participation in Clinical Quality Registries
The cornerstone of a successful CQR is data quality and medical colleges should use their position to ensure high quality data, which requires full participation, high case ascertainment, and data completeness
Robert J Aitken · Julian A Smith · Guy J Maddern
Innovative approaches to fall prevention in community‐dwelling older adults
Fall prevention should be an urgent public health priority as Australia’s population continues to age. This perspective highlights recent innovations that have the potential to deliver scalable, accessible and sustainable solutions
Kim Delbaere · Catherine Sherrington · Catherine M Said · Vasikaran Naganathan
Lung cancer biobanking in Australia: challenges and future directions
Overview of lung cancer biobanking globally and in Australia, challenges such as difficulty with tissue acquisition, the usefulness of biospecimens in multi-omic analysis, as well as unique challenges faced in Australia
Sarah Yeo · Stephen Q Wong · Farzaneh Atashrazm · Andreas Behren · Anthony T Papenfuss · Natalia Vukelic · Lisa Briggs · Ashleigh R Poh · Daniel Steinfort · Natasha Smallwood · Kate Sutherland · Vivek Naranbhai · Sagun Parakh · Tracy Leong
New evidence supports a greater focus on streptococcal skin infections to prevent rheumatic fever
Generating strong, convincing evidence about effective prevention and treatment of skin infections and its benefits in reducing immune-mediated diseases will require a large, sustained, international research effort
Michael G Baker · Julie Bennett · Teuila Percival · Alison Leversha · Jason Gurney · Nicole J Moreland
A salute to ten years of Australian Clinical Care Standards: celebrations and challenges
A reflection and celebration marking ten years of the Clinical Care Standards program at the Australian Commission on Safety and Quality in Health Care
Alice L Bhasale · Carolyn Hullick · Maria B Sukkar · Anne Duggan
Opportunities to improve surveillance of hepatocellular carcinoma in Australia
Introduction of five key actions for Australia to reduce hepatocellular carcinoma mortality through increasing liver cancer surveillance uptake
Jess Howell · Jon D Emery · Stuart Roberts · Alexander J Thompson · Michael Ng · Jacob George · Barbara A Leggett · Edmund Tse · Bella Nguyen · Troy Combo · Alan J Wigg
Taking up the challenge of eliminating racism in health care through talking about race (and culture)
Transformative change cannot be enacted without challenging the workings of racial power, and health systems must adopt a broader antiracist strategy that engages with the structural and lived realities of race and racism
Chelsea J Watego · David Singh · Kevin Yow Yeh · Helena Kajlich · Saran Singh
Decolonising primary health care practice: a definition and its importance
This perspective reports on a highly collaborative research process through which a clear definition of decolonising primary health care practice in an Australian context has been developed, and how this can be applied
Tamara J Mackean · Kim O'Donnell · Juanita Sherwood · Shane D'Angelo · Madison Shakespeare · Cleone Wellington · Toby Freeman · Anna M Ziersch · Matt Fisher · Deborah A Askew · Judith M Dwyer · Annette J Browne · Fran Baum AO
Climate and environmental crisis: effects on ear and hearing health in Australia and for Aboriginal and Torres Strait Islander peoples
Otitis media is just one example of a common and serious childhood illness with economic, social and environmental risk factors on track to escalate with the effects of climate change
Georgia M Tongs (Wiradjuri) · Isabella Ludbrook · Jennifer H Martin · Robert Eisenberg · Kelvin M Kong (Worimi)
Core components of a best practice First Nations cancer coordinator role
The core elements of a First Nations cancer care coordination role developed by iterative yarning with First Nations stakeholders, audits of current care, and recommendations from existing patient coordinator programs
Mollie C Wilson · Marissa Mulcahy · Jennifer Philip · Brian H Le · Gail Garvey
Fulfilling First Nations health, cultural safety and equity accreditation standards in primary medical education: reflections from a First Nations desktop review team
An Aboriginal desktop review team evaluated the preliminary self-assessments of primary medical education providers to gauge how they are currently positioned to meet the new standards pertaining to First Nations health, cultural safety, and equity
Paul Saunders · Nicole Mercer · Maria Mackay · Ian Lee · Madelyne Hudson‐Buhagiar · Miriam Cavanagh · Emma Milliss · Melody Muscat · Kathleen Martin · Adam Shipp · Melissa Johnson · Belinda Gibb
Dialysis care in Australia: a call for reform and innovation
Chronic kidney disease (CKD) disproportionately affects individuals from disadvantaged backgrounds, posing significant health and social challenges. It is estimated that 1.7 million Australian adults have CKD, which is largely driven by the increasing incidence of metabolic diseases such as diabetes, hypertension and obesity.1 Kidney failure, the most advanced stage of CKD, requires kidney replacement therapy (KRT) and represents a substantial burden on both the health and economic systems in Australia. Currently, 15518 adult and paediatric patients with kidney failure are treated with dialysis in Australia, with 76% receiving in‐centre haemodialysis, and 24% using home dialysis therapies (peritoneal dialysis or home haemodialysis).2 In 2020–21, CKD care cost about $1.9 billion, with 89% of the expenditure being spent on hospital services. Most of this expenditure is likely due to dialysis treatments, as dialysis accounted for 81% of CKD hospitalisations in 2021–22.1 Although transplantation provides an alternative treatment option for patients with kidney failure, there were 926 new patients added to the transplant waiting list in 2022, with demand outpacing supply.3 Despite Australia's universal health care system, considerable inequities in access to dialysis care exist. A recent haemodialysis capacity survey conducted by the Australia and New Zealand Dialysis and Transplant (ANZDATA) Registry, in collaboration with the Australian and New Zealand Society of Nephrology (ANZSN), has highlighted these disparities. Patients undergoing haemodialysis typically require three 4.5‐ to 5‐hour sessions per week to manage their kidney failure. This treatment schedule is essential for maintaining adequate filtration of toxins and excess fluid from the body. Given that dialysis centres generally operate six days a week with two shifts per day, each dialysis chair should ideally support no more than four patients per week. Exceeding a patient:chair ratio of 4:1 not only compromises the unit's ability to provide high quality care but also limits its capacity to respond to unexpected events, such as equipment failures or patient surges during a pandemic, thereby reducing overall flexibility and resilience.4 This ratio also only accounts for long term haemodialysis patients and does not include the workload from hospital inpatients needing acute dialysis, such as patients requiring temporary dialysis and long‐term patients requiring dialysis outside their local facility.4 In Australia, the average patient:chair ratio is about 3.33, but it differs considerably across different states and territories, from 0.25 to 6.75. Darwin and Perth have the highest patient:chair ratios, averaging 4.31 and 4.37 respectively. In contrast, the patient:chair ratio in Sydney and Melbourne averages between 3.61 and 3.64.4 This variability persists for units outside of capital cities, with the patient:chair ratios in the Northern Territory and Western Australia averaging 4.68 and 3.97 respectively, whereas New South Wales and Victoria average 2.53 and 2.70 respectively.4 However, these figures mask significant variability, with some centres accommodating up to six patients per haemodialysis chair, and only account for long term dialysis patients. Centres in western and south‐western Sydney, for example, are stretching their nursing resources by running up to three dialysis shifts per day (including twilight shifts), increasing the patient:chair ratio to as high as 5:1 or 6:1.4 The strain on these centres has led to compromised dialysis care, with some patients, even those with minimal residual kidney function, receiving dialysis twice weekly instead of the standard thrice weekly schedule. It has also restricted patients’ autonomy in selecting their preferred modality and participating in shared decision making. Additionally, due to limited dialysis spaces, there is a lack of capacity to facilitate travel for social or personal reasons.5 Although emerging evidence suggests that incremental haemodialysis may benefit some new patients commencing dialysis by preserving residual kidney function,5 reducing dialysis frequency due to dialysis capacity constraints comes with significant risks, including increased mortality risk and hospitalisations due to inadequate dialysis.6 Key drivers behind the dialysis crisis The dialysis crisis in Australia stems from several intersectional factors including rising demand, uneven distribution of existing resources, and the long term issue of system inequities, with increased centralisation of dialysis services to cities and larger towns. Disproportional rise in the prevalence of advanced stage kidney disease in disadvantaged communities This is one of the key drivers for the inequities in access to dialysis care. Underprivileged populations, including Aboriginal and Torres Strait Islander peoples and ethnic minorities, such as those with Pasifika ancestries, face a significantly higher prevalence of CKD, largely due to an increased burden of metabolic diseases.7,8 Individuals from socio‐economically deprived regions, including those from remote locations, often encounter multiple barriers to receiving timely and appropriate specialist care. These disparities, exacerbated by limited health literacy and chronic underinvestment in health care services in high need areas, directly contribute to the growing number of people requiring KRT.1 For example, Mount Druitt in western Sydney experienced an annual growth in incidence of kidney failure from 9 patients in 2001–2003 to 32 in 2019–2021; a 263% increase against a background population gain of 21%. Similar findings were observed in the Brimbank local government area (Melbourne), with incidence growth rates rising from 17 to 46; an increase of 212% against a background population gain of 22%.9 More importantly, over 60% of people living in these areas are considered to be socio‐economically disadvantaged.9 As a result, the demand for dialysis services has surged disproportionately in certain regions, placing immense strain on health care infrastructure and further widening health inequities across Australia. Travel times also need to be considered, with patients from rural communities who require KRT needing to either spend time away from home for training or surgical procedures for home‐based dialysis, or relocate for in‐centre treatment, all of which incur additional costs.10 Workforce constraint Workforce shortages represent a significant problem in Australia's dialysis and nephrology care system. Against the background of increasing patient load, health care workers face mounting job demands, including high case load pressures and elevated patient:nurse ratios, even in high acuity inpatient dialysis settings where more intensive care is needed. Higher patient:nurse ratios are associated with adverse outcomes, including increased rates of hypotension, shortened dialysis sessions, staff burnout and high workforce turnover.11 Additionally, inadequate remuneration and low job satisfaction have contributed to the growing shortage of trained nephrology and dialysis nurses, especially in remote areas. Despite the dialysis crisis, about 27% of existing dialysis units have non‐operational haemodialysis chairs, with nearly 75% being due to lack of funding or appropriately trained staff.4 These workforce issues compound the strain on dialysis services, undermining the quality of care and exacerbating the disparity in access issues for patients across the country. Shift from home therapy to in‐centre dialysis This move places an additional burden on dialysis capacity, with more than 50% of Australian patients treated with peritoneal dialysis experiencing treatment failure after 5 years.12,13 The transition to in‐centre haemodialysis is often unplanned, requiring dialysis centres at full capacity to either perform after‐hours dialysis or dialyse patients in intensive care units. Additionally, given the frequency and chronicity of long term dialysis, patients transitioning to in‐centre dialysis require access to services close to home. Reduced organ donation rates since the coronavirus disease 2019 pandemic As a result of the coronavirus disease 2019 pandemic, Australia experienced a notable decline in organ donation and transplantation activities. The deceased donor rate per million population (dpmp) dropped from the peak of 21.6 in 2019 to 16.4 in 2021. Although it has gradually recovered, reaching 19.4 dpmp in 2023, the target of 25 dpmp established by the Australian Organ and Tissue Authority has yet to be met.14 Although most deceased donors for kidney transplantation have traditionally come from donation after neurological determination of death (DNDD), representing about 65%, there has been a steady increase in donation after circulatory determination of death (DCDD).15 Currently, DCDD donors make up over 30% of all deceased donors in Australia, reflecting an important shift in the donor profile. Although our research indicates that transplantation using DCDD offers comparable outcomes with DNDD kidneys, about 40% of kidney transplant recipients who received a kidney from DCDD experience delayed graft function (DGF).16 DGF necessitates a temporary period of haemodialysis before the transplanted kidney starts working, adding to the already strained dialysis capacity in inpatient centres. This additional dialysis burden exacerbates the barriers faced by dialysis services, further stretching resources in an already overburdened system. Strategies to mitigate the crisis Health professionals across Australia and New Zealand, along with multiple professional bodies involved in caring for patients with kidney failure, recently released a joint position statement regarding dialysis capacity.17 Expanding dialysis infrastructure can take several years and there is an urgent need to identify and address reasons for these delays. Advancing real‐time data collection on existing dialysis demand and infrastructure is vital to informing service planning for the future and addressing these issues will require systemic reforms to improve infrastructure, workforce capacity, and equitable access to care. These reforms need to be developed with input from all relevant stakeholders, including health care professionals, policy makers, patients and caregivers, and would include a long term commitment to invest in training and retention of nephrology and dialysis nursing staff. As greater travel times are associated with higher costs, lower quality of life and reduced access to dialysis care, it is vital that we incorporate geographic analysis when planning for service provision. Strategies to encourage home‐based dialysis are crucial and need to focus on health care policy, local facility infrastructure and individual patient factors that affect use of home‐based dialysis. Additionally, implementing culturally appropriate, community‐led health initiatives in disadvantaged and high need areas can improve early detection, prevention and management of CKD and reduce the number of patients progressing to kidney failure. Conclusion Despite having a well structured, publicly funded system, the provision of and access to dialysis care varies considerably across Australia. These inequities are driven by a combination of factors, extending beyond financial and economic constraints. Workforce shortages, particularly of nephrology and dialysis nursing staff, represent a critical problem, limiting the ability of health care facilities to meet the growing demand for dialysis services. To address these challenges, sustained efforts and collaboration between health care professionals, policy makers and communities are urgently needed to mitigate the impact of dialysis burden, reduce disparities and improve outcomes for all patients living with kidney failure across Australia.
Dharshana Sabanayagam · Angela Makris · Frederika Sciberras · Nicole J Scholes‐Robertson · Germaine Wong
A call to Indigenise occupational wellbeing
Occupational wellbeing is framed by Western perspectives, which overlook cultural, relational and regenerative dimensions that underpin Indigenous peoples’ worldview. This article calls for the Indigenising of occupational wellbeing so that work supports the survivance and thrivance of Indigenous Australians
Maria M Raciti · Chontel Gibson