Bunbury to Bundaberg, Darwin to Dover: establishing a successful Regional Participation Program for the ENDIA type 1 diabetes cohort study

Megan Ann Sabine Penno, Rebecca Louise Thomson and Jennifer J Couper
Med J Aust 2016; 205 (10): . || doi: 10.5694/mja16.00685
Published online: 21 November 2016

The Environmental Determinants of Islet Autoimmunity (ENDIA) study is a national longitudinal prospective cohort study which aims to identify the environmental factors that drive the development of type 1 diabetes (T1D) in at-risk individuals.1 Recruitment commenced in 2013 and is proceeding at eight hospitals across Adelaide, Sydney, Melbourne, Brisbane, Perth and Geelong, covering approximately 64% of the general population.2 In 2016, ENDIA launched the Regional Participation Program (RPP) to facilitate the participation of eligible families outside these cities.

  • 1 Robinson Research Institute, University of Adelaide, Adelaide, SA
  • 2 Women's and Children's Hospital, Adelaide, SA



This research is supported by JDRF Australia (recipient of the Australian Research Council Special Research Initiative in Type 1 Juvenile Diabetes), the Helmsley Charitable Trust, JDRF International and the National Health and Medical Research Council (ACTRN1261300794707). On behalf of the ENDIA study team, we thank the participants and their families and the contributing institutions, which are listed at .

  • 1. Penno MAS, Couper JJ, Craig ME, et al. Environmental determinants of islet autoimmunity (ENDIA): a pregnancy to early life cohort study in children at-risk of type 1 diabetes. BMC Pediatrics 2013; 13: 124.
  • 2. Australian Bureau of Statistics [website]. Regional population growth, Australia, 2014–15 (Cat. No. 3218.0). Canberra: ABS; 2016. (accessed May 2016).


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