Register4: an Australian web-enabled resource created by the National Breast Cancer Foundation to facilitate and accelerate cancer research

John L Hopper, Carmel Apicella and Alison J Butt
Med J Aust 2014; 200 (8): . || doi: 10.5694/mja14.00164
Published online: 19 May 2014

To the Editor: Register4 is an online register of Australian men and women that aims to reduce the costs and time involved in recruitment for cancer research studies by matching researchers with willing participants, harnessing the speed and reach of the internet. An initiative of the National Breast Cancer Foundation, Register4 was launched in 2010 and is modelled on the US Army of Women ( and the Australian Twin Registry.1 To date, there are nearly 40 000 members (> 96% women) with a broad demographic representation: aged from 18 to over 70 years (most 30–59 years); residing in all states and territories (most in New South Wales, Victoria and Queensland); and 80% born in Australia. The membership is highly motivated to participate in research: over 20% of members are willing to provide DNA samples or participate in a clinical trial, and nearly 15% are willing to provide a sample of breast tissue.

  • 1 Centre for Epidemiology and Biostatistics, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, VIC.
  • 2 National Breast Cancer Foundation, Sydney, NSW.



Seed funding for Register4 is provided by the National Breast Cancer Foundation. We acknowledge the contributions of Susan Henshall, Sue Carrick, Janet Hiller and members of the EPI-Q Advisory Group in the development of the register and analysis of EPI-Q data.

Competing interests:

No relevant disclosures.

  • 1. Hopper JL, Foley DL, White PA, Pollaers V. Australian Twin Registry: 30 years of progress. Twin Res Hum Genet 2013; 16: 34-42.


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