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Challenges of transition to adult health services for patients with rare diseases

Med J Aust 2013; 198 (11): 575-576. || doi: 10.5694/mja13.10424

What can be done for young people stuck in “health care limbo” when they leave paediatric services?

The teenage years are a time of transition, when young people must adapt to enormous physiological and emotional changes but also need time to aspire to the future. Young people living with chronic complex disease have dreams, but their challenges are amplified as they face transition from paediatric to adult health services and begin to take charge of their own complex health care needs.1

  • Yvonne A Zurynski1,2
  • Elizabeth J Elliott1,2

  • 1 Discipline of Paediatrics and Child Health, Sydney Medical School, University of Sydney, Sydney, NSW.
  • 2 Australian Paediatric Surveillance Unit, Sydney, NSW.


Acknowledgements: 

We thank Kate Steinbeck, Marie Deverell and Lynne Brodie for their comments on the manuscript. We thank Rare Voices Australia, the SMILE Foundation, the University of Sydney, Imogen Yang, Megan Fookes, Lesley Murphy, Jude Foster, Tamara Johnston, Catherine Gasparini, Evie Smith and Jade Mangan for supporting the Transition Forum. Australian Paediatric Surveillance Unit activities are supported by Australian Research Council Linkage Project Grant LP110200277and National Health and Medical Research Council Practitioner Fellowship 1021480 (to E E). This project was supported in part by funding from the Australian Government under the Chronic Disease Prevention and Service Improvement Fund. Our article does not necessarily reflect the views of the Australian Government.

Competing interests:

No relevant disclosures.

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