Challenges of transition to adult health services for patients with rare diseases

Yvonne A Zurynski and Elizabeth J Elliott
Med J Aust 2013; 198 (11): . || doi: 10.5694/mja13.10424
Published online: 17 June 2013

What can be done for young people stuck in “health care limbo” when they leave paediatric services?

The teenage years are a time of transition, when young people must adapt to enormous physiological and emotional changes but also need time to aspire to the future. Young people living with chronic complex disease have dreams, but their challenges are amplified as they face transition from paediatric to adult health services and begin to take charge of their own complex health care needs.1

  • Yvonne A Zurynski1,2
  • Elizabeth J Elliott1,2

  • 1 Discipline of Paediatrics and Child Health, Sydney Medical School, University of Sydney, Sydney, NSW.
  • 2 Australian Paediatric Surveillance Unit, Sydney, NSW.


We thank Kate Steinbeck, Marie Deverell and Lynne Brodie for their comments on the manuscript. We thank Rare Voices Australia, the SMILE Foundation, the University of Sydney, Imogen Yang, Megan Fookes, Lesley Murphy, Jude Foster, Tamara Johnston, Catherine Gasparini, Evie Smith and Jade Mangan for supporting the Transition Forum. Australian Paediatric Surveillance Unit activities are supported by Australian Research Council Linkage Project Grant LP110200277and National Health and Medical Research Council Practitioner Fellowship 1021480 (to E E). This project was supported in part by funding from the Australian Government under the Chronic Disease Prevention and Service Improvement Fund. Our article does not necessarily reflect the views of the Australian Government.

Competing interests:

No relevant disclosures.


remove_circle_outline Delete Author
add_circle_outline Add Author

Do you have any competing interests to declare? *

I/we agree to assign copyright to the Medical Journal of Australia and agree to the Conditions of publication *
I/we agree to the Terms of use of the Medical Journal of Australia *
Email me when people comment on this article

Online responses are no longer available. Please refer to our instructions for authors page for more information.