MJA
MJA InSight
MJA Careers
Perspectives

Towards sharing health-services data

Michael D Coory and Craig L Fry
Med J Aust 2012; 196 (7): 438-439.
doi:
10.5694/mja11.11238

Data sharing would speed progress in improving the Australian health system

Michael D Coory, MB BS, FAFPHM, PhD, Public Health Physician1
Craig L Fry, BSc(Hons), DrPH, NHMRC Career Development Fellow (Population Health),1 and Associate Professor/Principal Fellow2
1 Murdoch Childrens Research Institute, Melbourne, VIC.
2 Centre for Applied Philosophy and Public Ethics, University of Melbourne, Melbourne, VIC.
Article References: 
Reference Text: 
Walport M, Brest P. Sharing research data to improve public health. Lancet 2011; 377: 537-539.
Reference Order: 
1
PubMed ID: 
21216456
Reference Text: 
Pisani E, AbouZahr C. Sharing health data: good intentions are not enough. Bull World Health Organ 2010; 88: 462-466.
Reference Order: 
2
PubMed ID: 
20539861
Reference Text: 
COAG Reform Council. National Healthcare Agreement: Performance report for 2009–10. Canberra: CRC, 2011. http://www.coagreformcouncil.gov.au/reports/healthcare.cfm (accessed Nov 2011).
Reference Order: 
3
Reference Text: 
Stanley F. Privacy or public good? Why not obtaining consent may be best practice. Significance 2010; 7: 72-75. doi: 10.1111/j.1740-9713.2010.00423.x.
Reference Order: 
4
Reference Text: 
The Centre for Health Record Linkage. Centre for Health Record Linkage: the first three years, 2006–07 to 2008–09. Sydney: CheReL, 2009, http://www.cherel.org.au/media/13571/cherel-the-first-three-years-2006-07-to-2008-09.pdf (accessed Nov 2011).
Reference Order: 
5
Reference Text: 
National Collaborative Research Infrastructure Strategy. Population Health Research Network. http://ncris.innovation.gov.au/Capabilities/Pages/PopHealth.aspx (accessed Mar 2012).
Reference Order: 
6
Reference Text: 
National Statistical Service. Vision statement: http://www.nss.gov.au/nss/home.nsf/pages/Vision+Statement?OpenDocument (accessed Nov 2011).
Reference Order: 
7
Reference Text: 
National Health and Medical Research Council. National statement on ethical conduct in human research 2007 [updated 2009]. Canberra: NHMCR, 2007. http://www.nhmrc.gov.au/guidelines/publications/e72 (accessed Mar 2012).
Reference Order: 
8
Reference Text: 
O’Keefe CM, Connolly CJ. Privacy and the use of health data for research. Med J Aust 2010; 193: 537-541.
Reference Order: 
9
PubMed ID: 
Can't
Reference Text: 
El Emam K, Dankar FK, Issa R, et al. A globally optimal k-anonymity method for the de-identification of health data. J Am Med Inform Assoc 2009; 16: 670-682.
Reference Order: 
10
PubMed ID: 
19567795
Reference Text: 
Australian Law Reform Commission. The Privacy Act and health information. In: Australian Privacy Law & Practice Report (ALRC Report 108). Canberra: ALRC, 2008. http://www.alrc.gov.au/publications/report-108 (accessed Nov 2011).
Reference Order: 
11
Reference Text: 
Holman CD. An end to suppressing public health information. Med J Aust 2008; 188: 435-436.
Reference Order: 
12
PubMed ID: 
18429705
Reference Text: 
Yazahmeidi B, Holman CD. A survey of suppression of public health information by Australian governments. Aust N Z J Public Health 2007; 31: 551-557.
Reference Order: 
13
PubMed ID: 
18081576
Reference Text: 
Pullman D, Buehler SK, Felt L, et al. Sorry, you can’t have that information: data holder confusion regarding privacy requirements for personal health information and the potential chilling effect on health research. Healthc Policy 2009; 4: 61-76.
Reference Order: 
14
PubMed ID: 
20436810
Reference Text: 
Straus SE, Tetroe J, Graham I. Defining knowledge translation. CMAJ 2009; 181: 165-168.
Reference Order: 
15
PubMed ID: 
19620273
Reference Text: 
Heritage Provider Network. Health Prize Competition, 2011. http://www.heritagehealthprize.com (accessed Nov 2011).
Reference Order: 
16

The full contents of this page are only available to subscribers.