Umbilical cord blood banking: public good or private benefit?
Authors: Gabrielle N Samuel, Ian H Kerridge and Tracey A O’Brien
Published online: 17 November 2008
In reply: Roberts asserts that we are biased, paternalistic and driven by an ideological objection to private umbilical cord blood (UCB) storage. While this is impressive rhetoric, it bears little resemblance to the points made in our article.1
Contrary to Roberts’ assertion, we do not object to private UCB storage. Our primary concern is that marketing campaigns make misleading or grandiose claims about the possible application of privately stored UCB in cancer care and regenerative medicine. For, although stem cell research does have great promise, it remains clinically unproven in the management of degenerative conditions. Offering hope of cure or amelioration of illness based on scientific speculation is enormously problematic, especially when directed at vulnerable parents concerned about their unborn child. While some private UCB banks take great care to avoid deliberate deception, many do not.2,3 We agree that parents should be able to decide for themselves how and if to store their child’s UCB, but they need accurate information to do so.
Finally, Roberts asserts that there is no shortage of public UCB units or donors. In reality, there is a vast shortage of UCB units available to ethnic minority and Indigenous patients.4 North Caucasian donation also needs to be maintained, particularly as the impact of double-cord transplantation becomes apparent.4
References
- Samuel GN, Kerridge IH, O’Brien TA. Umbilical cord blood banking: public good or private benefit? Med J Aust 2008; 188: 533-535. 0_i1091837
- Sugarman J, Kaalund V, Kodish E, et al. Ethical issues in umbilical cord blood banking. Working Group on Ethical Issues in Umbilical Cord Blood Banking. JAMA 1997; 278: 938-943. 0_CBBEEDJD
- Royal College of Obstetricians and Gynaecologists. Umbilical cord blood banking. Scientific Advisory Committee opinion paper 2. London: RCOG, 2006. http://www.rcog.org.uk/index.asp?PageID=545 (accessed Jul 2008).
- Samuel GN, Kerridge IH, Vowels M, et al. Ethnicity, equity and public benefit: a critical evaluation of public umbilical cord blood banking in Australia. Bone Marrow Transplant 2007; 40: 729-734. 0_i1091845