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Ethics and research participation

Simon C Gandevia
Med J Aust 2003; 178 (6): . || doi: 10.5694/j.1326-5377.2003.tb05202.x
Published online: 17 March 2003

To the Editor: The recent article by Scott and colleagues1 described a retrospective analysis by postal questionnaire of the attitudes of family members to participation (about a year earlier) in a face-to-face interview about their child's diagnosis of Ewing's sarcoma. This was accompanied by an editorial exposing the complexities of research participation, including the potential risks of interviews as well as the role of altruism.2




Correspondence: 

  • 1. Scott DA, Valery PC, Boyle FM, Bain CJ. Does research into sensitive areas do harm? Experiences of research participation after a child's diagnosis with Ewing's sarcoma. Med J Aust 2002; 177: 507-510. <eMJA full text>
  • 2. Braunack-Mayer A. The ethics of participating in research. Med J Aust 2002; 177: 471-472. <eMJA full text>
  • 3. National Health and Medical Research Council. National statement on the ethical conduct of research involving humans. Canberra: NHMRC, 1999.

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