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The coordinated care trials were nothing if not ambitious! In 1994, the Council of Australian Government proposed that the organisation, funding and management of health and community services could be restructured into three streams: 1
a general stream for individuals needing either occasional or uncomplicated healthcare;
an acute stream for patients needing specialised services for acute illness; and
a coordinated stream for patients requiring a mix of healthcare services over an extended period. It was assumed that in the last stream patients would benefit by having their care managed and coordinated.
Following a national tender process, nine trials of coordinated care were activated and funded by the Commonwealth (Box 1). A central premise of the trials was that better coordination of the care of people with chronic or complex needs would reduce hospitalisation, and the savings could cover the costs of coordination. The coordinated care trials were the largest and most ambitious experiment of a new method of organising healthcare services ever attempted in Australia.
The trials ran for two years. Evaluation was undertaken both nationally and at the local level. Much of the trial documentation and evaluation reports are available on the Commonwealth Department of Health and Ageing's website.3
Despite this effort and expenditure, the outcomes were disappointing (Box 1). In general, the trials did not demonstrate improved health and well-being of the participants. A significant reduction in hospital admissions in the intervention compared with the control group was seen in only three of the trials, and for most trials an accrued operating deficit was found. Was this ambitious healthcare experiment a failure? It is hard to say because, unfortunately, the design of the trials made it difficult for them to achieve their stated objectives.
The trials included the following design shortcomings.
Each trial was funded for two years, but the first six months were devoted to recruitment and the last six months were a wind-down phase. Thus, in many trials, the actual intervention was for 12 months or less, a very short period in which to make an impact on complex illnesses.
Difficulty in recruiting sufficient numbers of participants forced many trials to relax inclusion criteria, with the result that many individuals entered in the trial were inherently unable to benefit from coordinated care, since they were not sick enough, or had insufficiently complex problems to warrant care coordination.4,5
In many trials, the same intervention was applied to all participants regardless of the severity of their condition or ability to respond to the intervention.
Interventions varied markedly between trials.
The chosen measure of well-being, the SF-36, was not optimal to assess the types of intervention, especially over the relatively short trial periods.
Despite these shortcomings, the trials provided a number of benefits. Fundholding allowed trials to fund strategies such as quit smoking interventions that otherwise would not have been possible.6 Because of the evaluation needs, many service organisations received major technology upgrading of information systems. The trials received the full cooperation of the Health Insurance Commission, enabling the use of Pharmaceutical Benefits Scheme and Medical Benefits Scheme (MBS) information for evaluation purposes. New enhanced primary care MBS schedule items were announced shortly before the publication of the final results. Finally, much of the qualitative evaluation showed that participants in the intervention groups appreciated the extra coordination of their care.
The new round of coordinated care trials that has just commenced (Box 2) has taken on board much of what has been learnt from the first round. The trials are for three years rather than two, have better-targeted interventions, and outcome measures have been carefully selected for their sensitivity to the type of intervention.
The possibility remains, however, that the essential premise that better coordination reduces hospitalisation is misguided. It may be that lack of coordination in a complex care system operates as a functioning rationing system, so that better care coordination reveals unmet needs rather than resolving them. Experience in the mental health field implies that this may be so.7,8
With an ageing population and increasing burden of chronic diseases, the government has given priority to increased service coordination, vertical integration and cost containment. The coordinated care trials are just one of several strategies aimed at achieving these objectives. It might well be that the objectives are mutually exclusive and that improved coordination comes at a cost.
1: First round of coordinated care trials
General coordinated care trials
Nine trials in six States and Territories were funded, involving 10 967 intervention and 5571 control participants. Trials were designed as either randomised (where individuals were assigned at random to the intervention or control group) or geographically controlled (where two matched regions were used, one receiving the intervention). The trials ran from June 1997 to December 1999. Only the SA HealthPlus trial based participant inclusion on specific diagnoses, which included respiratory disease, diabetes, cardiovascular disease, stroke and somatisation.
Primary hypothesis
Coordination of care of people with chronic or complex needs results in improved participant health and well-being within existing resources.
Eligibility
Varied by trial, based on one or more of age, complex care needs, or specific diagnosis.
Intervention
Varied by trial, based on different models of care coordination, care planning and funds pooling.
Outcome measures
SF-36 measured at baseline, 12 months and 24 months. Health and community service use and expenditure from the Health Insurance Commission and other sources.
Results
Intervention groups did not perform better than control groups for either SF-36 scales or reductions in hospitalisation, readmission, or length of stay for those hospitalised. Trials were unable to fund coordinated care out of savings from reduced hospitalisation.
Aboriginal coordinated care trials
Four trials among Aboriginals and Torres Strait Islanders involved 6600 participants. The trials were located in Katherine West (NT), the Tiwi Islands (NT), Wilcannia (NSW) and Perth/Bunbury (WA), and were conducted between 1997 and 1999. Primary aims related to community empowerment and capacity building. The National Evaluation Summary outlines the background, description, experiences and outcomes of the trials.2 The national evaluation found that all trials showed enhanced service access, progress in infrastructure development, and improved individual and community empowerment. Funds pooling was successful in providing greater flexibility in resource allocation.
2: Second round of coordinated care trials
Six trials (three general, three Aboriginal community). Began in late 2002 to run for three years.
General trials Northern Venture: Continuation of Care 21 first-round trial, Adelaide. Team Care II: Continuation of Team Care first-round trial, Brisbane. Coordinated Health Care: Continuation of North Eastern first-round trial, Victoria. Coordinated Health Care has included specific diagnoses (respiratory disease, heart failure and complex diabetes) as part of its inclusion criteria. Team Care II and Coordinated Health Care are randomised controlled trials with about 2000 intervention participants and 1000 control participants expected. Northern Venture is a prospective intervention cohort trial using matched population controls. It will have about 2000 participants. Objectives 1. To identify people who are most likely to benefit from coordinated care. 2. To identify processes and infrastructure for effective integration and coordination of care. 3. To enhance the health status, quality of life and functional status of participants, and reduce the burden on carers. Outcome measures A range of quality-of-life, functional status and health assessment tools, plus carer instruments measured at baseline and at regular intervals. Health and community service use and expenditure from HIC and other sources. |
Aboriginal trials South West Aboriginal Medical Service (SWAMS): Continuation of SWAMS first-round trial, WA. Sunrise: Katherine East, NT. Mid North Coast: NSW. Objectives of Aboriginal trials 1. To improve the health of communities. 2. To improve community understanding or control of health and related services. Intervention Different models of care coordination, care planning and funds pooling. Outcome measures
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Department of General Practice, Flinders University, Adelaide, SA.
Adrian J Esterman, MSc, CStat, Senior Lecturer.Clinical Epidemiology Unit, Flinders Medical Centre, Adelaide, SA.
David I Ben-Tovim, PhD, FRANZCP, Director.Correspondence: Mr A J Esterman, Department of General Practice, Flinders University, Bedford Park, Adelaide, SA 5042. adrian.estermanATflinders.edu.au
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©The Medical Journal of Australia 2002 www.mja.com.au PRINT ISSN: 0025-729X ONLINE ISSN: 1326-5377