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To the Editor: End-of-life issues: Case 11 illustrates an increasingly common scenario confronting physicians caring for older patients. The case example of a nursing home resident with stroke, dementia and the onset of pneumonia highlights the importance of encouraging patients to prepare for future medical decision-making. This can be done through the use of enduring guardianship, medical powers-of-attorney or advance care directives ("living wills"). Documenting these matters allows people to appoint others to make healthcare decisions on their behalf, and to indicate what treatment they would want in various clinical circumstances, should they no longer be competent to do so. If "Mrs W" had appointed an enduring guardian to deal with issues of healthcare and medical consent, or had indicated in an advance care directive what her wishes would be if she were to become seriously ill, the decision-making process may well have been clearer.
The other issue this scenario raises is the need to check whether Mrs W's daughter could have made medical decisions for her mother. In New South Wales, if the daughter had been in a caring role for her mother before nursing-home placement, she could be considered the "person responsible" (similar to the old concept of "next of kin"). Under the Guardianship Act 1987 (NSW), the "person responsible" is able to act as a substitute decision-maker for healthcare and medical treatment. While it would clearly still be good, sensible medical practice to involve other family members in discussion about Mrs W's future, it would ultimately be the daughter, as the "person responsible", who would be able to make those decisions.
Rehabilitation and Aged Care Service, Hornsby Ku-ring-gai Hospital, Hornsby, NSW.
Susan E Kurrle, Director and Geriatrician.Correspondence: Dr Susan E Kurrle, Rehabilitation and Aged Care Service, Hornsby Ku-ring-gai Hospital, Palmerston Road, Hornsby, NSW 2077. kurrleATbigpond.com
In reply: We agree with Kurrle about the importance of encouraging patients to prepare for future medical decision-making. The strategies she suggests are practical and useful. However, we believe that the difficulties confronting physicians in caring for older patients require us to go further and to rethink what represents excellent care at the end of life. Today, death from acute illness has largely been superseded by death from chronic illness, and the latter generally follows one of three main trajectories: cancer, organ system failure or dementia/frailty.1 Our systems of care for people who are near the end of life need to reflect the ways in which elderly people actually decline and die. If we wish to promise elderly people what a decent society should be able to promise them (accurate diagnoses, excellent control of symptoms, the absence of any gaps in care and of any "surprises" in their condition and its treatment, clarity about the role of their family in caring for them, a way of dying that accords with their hopes, and, most importantly, help to live the remaining part of their lives "to the full"), we need to rethink the care provided during hospitalisation of older people at the end of their lives.1
(Received 16 May 2002, accepted 22 May 2002)
Plunkett Centre for Ethics in Healthcare, St Vincent's Hospital, Darlinghurst, NSW.
Bernadette M Tobin, MA PhD, Director.Rehabilitation Studies Unit, Royal Rehabiliation Centre, Ryde, NSW.
Ian D Cameron, FACRM FAFRM PhD, Director.Correspondence: Dr Bernadette M Tobin, Plunkett Centre for Ethics in Healthcare, St Vincent's Hospital, Victoria Street, Darlinghurst, NSW 2010. b.tobinATplunkett.acu.edu.au
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©The Medical Journal of Australia 2002 www.mja.com.au PRINT ISSN: 0025-729X ONLINE ISSN: 1326-5377