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Medicine and the Community
Healthcare on the Internet
Buyers beware
Peter M Yellowlees
MJA 2000; 173: 629-630
The World Wide Web is becoming a new medium of medical practice.
Access to misinformation -
Internet addiction -
The practice of skullduggery -
References -
Authors' details
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Around the world books and other media are focusing increasingly on
aspects of healthcare on the Internet.1 A whole series of new jargon
terms are evolving, such as "B2B" (Business to Business), "B2C"
(Business to Consumer), "D2D" (Doctor to Doctor) and "D2C" (Doctor to
Consumer/Patient). While these terms seems to derive more from the
business world than the medical, the two worlds are becoming
increasingly intertwined. Doctors are more familiar, through their
training, with the derivation of other new terms such as
"cyberchondria", "cybersex", "technophobia" and "Internet
addiction disorders".
As a clinician and researcher who is interested in the exciting
possibilities of Internet healthcare, I have been encouraging
patients to use the Internet to access health information for some
years, and also to communicate with me, if they wish, by email. Several
patients have effectively self-referred themselves to me, via their
general practitioners, after reading my curriculum vitae, which is
posted on a website at the University of Queensland
(www.coh.uq.edu.au). I also encourage patients to download
information about their disorders from the Internet to discuss with
me or other doctors or healthcare professionals who might be treating
them. I keep a list of what I consider to be good sites on the Web that I can
hand out to patients who wish to do research themselves, and who at
least want a reasonable start in finding good-quality information
from reliable sites. In future, with the increasing prevalence of
published e-books in particular, patients will be able to learn how to
do structured searches that make it more likely that they will get
good-quality health information from the Internet.2
I am confident that the Internet, and in particular the much faster
Internet2 that will be with us within two or three years,3 will have a
positive overall effect on the way we treat our patients and the way
they manage themselves. It is, however, crucial to retain a critical
view of any new approaches in healthcare, and to evaluate them
carefully, as it is becoming clear that there are some quite marked
"side effects" to the Internet.
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Patients do need to understand the importance of finding both
reliable and valid information,4 and I believe that doctors
will increasingly need high level skills in information analysis as a
core medical competence. Unfortunately, at present, patients too
often gain health information from chat rooms and discussion groups,
and this is frequently either wrong or inappropriate. Just as there
have been well publicised cases of individuals altering stock market
values on the NASDAQ (the American National Association of Security
Dealers Automated Quotation system) by aggressively presenting
themselves in discussion groups, so cases are arising of cults,
religious or otherwise, and other unusual organisations, trying to
influence people through misinformation. Patients may heed this
information and buy the wrong products or services.
Similarly, many health sites promote the sales of unproven
treatments, or may in fact be entirely bogus, intended as satire or
designed to steer people towards pornographic sales and marketing
situations, or the like.
Patients are increasingly sending emails to sites that offer medical
advice, purported to be from licensed medical practitioners, or
seeking consultations by email. It is obviously vitally important
that patients know who exactly is the doctor that they are emailing,
and I would personally strongly advise against any patients
receiving information from an anonymous doctor.
As a brief test of potential quality of health "advice" on the
Internet, I recently asked a question at a major commercial American
health site about the ideal treatment for depression. I received
three single-sentence replies from an individual identified only by
a number and which were completely contradictory, informing me I
should (a) see a psychiatrist, (b) always engage in psychotherapy,
and (c) consider medications, without any further details. I believe
I would have received a better reply from a women's magazine agony
aunt.
Some clinically sensible and ethically focused Internet healthcare
sites are beginning to emerge. Perhaps the most well known is NHS
Direct,5 in the United Kingdom, where
symptom-driven decision trees (effectively patient
decision-support systems) are backed up by a nursing telephone
service which allows symptomatic patients to be triaged and to select
either self-care, general practice or hospital treatment options.
In Australasia the most comprehensive email consultation site is
doctorglobal.com,6 with which I am commercially
involved. Patients who access Doctor Global consult a named
doctor, whose photograph and biography appear on the site, whose work
is audited by a clinical advisory board and who has gone through a
formal accreditation process before being allowed to practise
through the site. At the moment, mainly because of medicolegal fears
and a more restrictive clinical culture, there is no equivalent broad
healthcare website in the United States providing real electronic
clinical consultations.
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The concept of Internet addiction disorder7,8 has been
around for some years, but cases of patients so affected are becoming
increasingly prevalent, and I have treated several (Case 1).
Internet addiction disorder is so well described on the Internet that
it is even possible to receive treatment online.9 This seems a bit
like going to the pub for a few drinks to try to cure one's alcohol
dependence, and isn't something that I would instantaneously
recommend.
Cyberchondria is a syndrome closely related to Internet
addiction disorder that is also becoming increasingly common, and
which occurs in anxious or hypochondriacal patients who start
spending too much time chasing around the Web searching for
information which may make them more anxious (Case 2).10 I can see no
reason to define cyberchondria as a new form of psychiatric disorder,
as it is simply a modern-day approach taken by those hypochondriacal
patients who in the past have tended to read too many medical
dictionaries.
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Like it or not, our world will always contain some dreadful people who
prey on others, and who will now use the Internet as their chosen access
route to victims.11 At least one man has
already been imprisoned for "stalking" his ex-girlfriend on the
Internet by publicising her name and contact details as someone who
prostituted herself for clients wishing to have sadomasochistic
sex. There are examples of men who cross-dress on the Internet
pretending to be women, and then having steamy cyber-relationships
with other men (a seemingly fairly common danger of Internet love
affairs), and many instances of paedophiles joining chat rooms to try
to meet adolescents.
As long as we are aware of these sorts of side effects, or dangers, we can
make sure that patients are appropriately warned. Whatever we may
think personally of the Internet -- and I am an obvious enthusiast -- it
is inevitable that patients will increasingly use it both to find
information about their disorders, and to communicate with doctors.
There are now several publications that promote the sensible use of
the Internet in healthcare and which propose guidelines for medical
activities, in particular email use, on the Web.12,13 These
should certainly be reviewed by all doctors who intend now, or in the
future, to practise, at least in part, in this manner.
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- Slack W. Cybermedicine. San Francisco: Jossey-Bass; 1997.
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Yellowlees P. Your guide to e-health. Third millennium medicine on
the Internet. Brisbane: University of Queensland Press, 2000 [eBook
available from http://www.uqp.uq.edu.au]. Accessed 27 October
2000.
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About Internet2.
<http://www.internet2.edu/html/about.html> Accessed 27
October 2000.
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Yellowlees PM, Brooks P. Health online: the future isn't what it
used to be. Med J Aust 1999; 171: 522-525.
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NHS Direct. <http://www.nhsdirect.nhs.uk> Accessed 27
October 2000.
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Doctor Global. <http://www.doctorglobal.com> Accessed
27 October 2000.
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Young K. Caught in the net: how to recognise the signs of Internet
addiction. New York: J Wiley & Sons; 1998.
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Yellowlees PM. E-therapy: a guide to mental health in cyberspace.
[eBook available from http://www.mightywords.com]. Accessed 27
October 2000.
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Center for On-line Addiction.
<http://www.netaddiction.com> Accessed 27 October 2000.
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Brosnan M. Technophobia: the psychological impact of
information technology. London: Routledge, 1998.
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Gwinnell G. Online seductions: Falling in love with strangers on
the Internet. New York: Kodansha Press; 1998.
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Kane B, Sands DZ. Guidelines for the clinical use of electronic
mail with patients. J Am Med Inform Assoc 1998; 5: 104-111.
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Spielberg AR. On call and online: sociocultural, legal and
ethical implications of email for the patient-physician
relationship. JAMA 1998; 280: 1353-1359.
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Department of Psychiatry, Faculty of Health Sciences, University of
Queensland, Brisbane, QLD.
Peter M Yellowlees, MD, FRANZCP, Head, and Director, Centre
for Online Health.
Reprints will not be available from the author. Correspondence:
Professor P M Yellowlees, Department of Psychiatry, University of
Queensland, K Floor, Mental Health Centre, Royal Brisbane Hospital,
Herston, QLD 4029. P.YellowleesATmailbox.uq.edu.au
©MJA 2000
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Case 1: Internet addiction disorder
Mr A was a 25-year-old, highly intelligent university student undertaking
a health sciences course. At the age of 22 he had his first bout of severe
depression, and was soon diagnosed with a bipolar disorder after a manic
episode. This young man also had a very obsessional personality style
and started spending many hours every day searching the Internet for information
about the biology and treatment of bipolar disorder, sitting up all night
and sometimes spending as much as 16 to 18 hours a day on his searches.
His inappropriate use of the Internet took over his life and made it impossible
for him to continue with his studies, and eventually became a greater
cause of disability than his original bipolar disorder. He was successfully
"withdrawn" from the Internet by agreeing to move back home
to live with his parents, who did not have an Internet connection, and
discontinued his university studies for some months while he received
treatment for his primary psychiatric disorder.
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Case 2: Cyberchondria
Mr B was a 28-year-old single man with a five-year history of somatisation
disorder. He became fascinated by the Internet, particularly by support
groups for people with his type of disorder, and started to spend large
amounts of time communicating with other sufferers on the Web. He became
obsessed with the need to find a "biological cure" for his disorder
and communicated regularly with researchers around the world involved
in this area. Treatment consisted of the conventional treatment for his
psychiatric disorder, particularly encouragement to use non-biological
approaches, as well as reducing the amount of time he spent on the Internet.
He was able to do this and, in a very positive postscript to his treatment,
while on holiday overseas he organised to see one of the psychiatric researchers
he had come to know on the Internet for a second opinion. I organised
this appointment for him and he was pleased with the outcome.
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